Deciding to share

Well I've thought and thought about doing a blog on living with severe psoriasis and how it just showed up oneday.

It's funny because I didn't know what it was for sometime. It started off as a patch back of calf just below my knee. Waiting patently to have rotators cup surgery after falling down stairs at work in 2007. I'd say around September is when I noticed it, had surgery in October. Had been taking meds from doctors due to injuries that were mostly on left side of body and go figure that's the side where psoriasis seems to be the worst.  Still working, dealing with comp people. Well by the time for follow up from surgery incisions were covered with Psoriasis, so started using over the counter thing because wasn't back to work yet and couldn't afford to see doctor. Well by the time I got to a doctor, sighs, let's just say it was a group of doctors and after first visit with that first one and they wanted me to go to her a second time I just had to say NO, omg, bed side manner, she had none what so ever, it seems no one in that particular doctors office which was a satellite site of there's (and I just told you why probably). This woman lied to my primary doctor regarding treatments and appointments, etc. Finally from same office I see another one and ummm prescribing a $800.00 ointment for someone who has plaques damn near all over their body and the tube barely last 3 day's I began wondering if they pass doctor licenses to anyone from a cracker jack box. Well lucky me at least the pills helped stop some of the itching and he was wise enough to send me to a doctor in the same office that specialized in psoriasis on the scale mine is (SEVERE).....WOW, a woman with a brain finally. why did I continue with doctors in this office? They were the closest, working 3rd shift you don't want to drive a hour to a doctor and I researched this doctor on net and she knew what she was doing. Enbrel shots, yes that's what she got me on and it did wonderful job, will I take another such drug? NO, why? ummm, death, heart failure, kidney and liver, etc, so on and so forth. So my choice to do alternative, check what not to eat, change food eating, now this works as long as  you are working, BUT, when you've fallen down 8 cement steps and have serious nerve damage on top of rotator cup injury you end up on work comp  and less money to eat right basically. More veggies, brown rice, brown pasta's. Who knew eating right cost so much. Who knew going to physical therapy. Then of course you have to keep stress down, lol...sure you can do that because you have a stress free life with a mother up in age that has continuous congestive heart failure, 2 full pay checks made things better, then spouse has cancer, must I go on? I'm just glad two very special in my life are doing well now but i'm a mess. Keep stress down with a child of yours who's wasting their life doing nothing literally and you know you've taught them the meaning of working for what you want, who you have to continue reminding them that nothing is free in life not even living at home... a true calogon moment you think, hell NO. Why? because you don't want to use anything with alcohol in it.

No I'm not bitching, ok I am and because I can and it doesn't help one bit but feels good for a bit. Now here it is 2011 and itchin is killing me, feet swell because psoratic arthritis, bottom of feet psoriasis, scalp psoriasis, ok 80% of body full of it, I'm not having fun. I was washing my hair oneday after soaking in sea salt, african black soap (works wonders Coastal Scents is the place), melts it off it, no lie.

Doing research on what to use that you have in your home, apple cider vinegar in bath, to just soak in. To let sit in hair for 15 minutes for scalp (just started this one). Picked up essential oils such as tea tree, pachouli oil, rose, chamomile (roman) is what i use, get chamomile tea (no sugar) grape seed oil, rose oil, african honey, flaxseed (we need the omega), Echinacea (help with immune system health) mine is with Goldeseal root as well, 2 tbls spoons a day of vinegar every day. I'm trying it all, what the hell can I loose other than my damn hair. Right, comb hair and it comes out in chunks, no it doesn't matter if u use a soft brush that doesn't pull because if u just so happen go to rub a itch hair coming out in your hand.

Oh let's not get so depressed that the daughter your close to you call and tell her thank you for having your grandchildren because if it weren't for them you'd probably consider a more severe alternative to dealing with psoriasis as bad as I have it. It's damn depressing washing hair not realizing hair coming out that bad till u wash it and it's in your hand. When u get out of the shower u happen to see self in mirror and see damn bald spot in front of your head. Not a small patch but huge patch. After a couple day's you get your senses back and say good thing you bought wigs when you realized doing hair with psoriasis was a hopeless cause.

I'm laid off almost 2 yrs now, i've gone to the er because I couldn't hardly walk because my damn feet stay so dry no matter how much vaseline, virgin olive oil, nivea, baby oil keep them moist enough to do day to day things. But you need job so you find out you can walk if you wrap saran wrap over a sock to keep them moist. Cant afford to go to doctor because no insurance, you did for a while but being laid off and paying what $300 a month just isn't cutting it, hell you have car insurance, car payment, food, utilities to help pay, you know everyday life, lol.Then you hear the price will go down you get happy and what a fuckin $1. It goes down a whole fat $1. Yep your right no insurance so home remedies and it worked around time put son out the house, but, yeah he's BAaaacccck, now working finally with threat of if you quit you will not have place to live therefore don't quit till you have one to go to very next day or same damn day. Mother in hospital for congestive heart failure from january to middle of march 2011. Stress, who's STRESSED, surely not me.

Well this bitch session is over going to soak. I do hope this let's someone know they aren't alone. You just have to keep on going and trying things. I'm frustrated as hell and pulling hair out literally.

Take care, tata